Wednesday, February 29, 2012

Today is but a Day


Today is today.
Today is tomorrow.
Today is yesterday.

Yesterday is today.
Yesterday is tomorrow.
Yesterday is yesterday.

Tomorrow is today.
Tomorrow is tomorrow.
Tomorrow is yesterday.

Today is but a day...
Today, Tomorrow, Yesterday.


Dedicated to Helen and the wonderful VITAS hospice team. Thank you for changing the life of my family and myself. Thank you for being there in my final hour and doing everything in your power to ensure that I am kept comfortable. Thank you for sharing my journey and for being my guiding angels. Today is all that we have, all that we are promised, and in that one day, lives can change. Live each day, and only that day, and in that a lifetime will be made.

Sunday, February 19, 2012

help

There is nothing easy about this. All our life we work towards the goal of being independent, completely independent. With each step we take we becoming stronger and more self-sufficient. We are no longer trapped by the confines of needing others, and yet at the moment, I must defy every part of me and do the opposite. I feel as if I am no longer a person, but rather only the shell of one. Instead of reaching for the goal of being more and more independent, I growing more dependent by the day. I fear the words that I must say, "I need help."

Three little words. One would not think they are so difficult. No one can be completely independent. Everyone needs someone, but when every aspect of your life depends on someone else, this takes on a completely different essence. Someone helps me do just about everything all day long, and at times it cuts into me. It tears me down. In a time in my life, when I would typically be going off and proving my idenependence - getting a job that I did all by myself, becoming an expert in my own career, living on my own, handling my own relationship, possibly creating new life myself and stearing them towards the goal of becoming independent; instead I become more dependent each day. Help me dress. Help me bathe. Help me eat. Help me breathe.

I started dressing myself when I was one years old, and I know I have to ask help to put on and take off my pants. Nov I get in trouble if I do it myself because it is seen as wasting my energy and because that is what the aids are for. However, it is very disconcerting to need to have someone help us. As a society as a whole we want to be completely independent. We don't want to "need help", and this is why asking for help is so hard. But God never intended us to be completely independent. If He had intended us to live and be completely independent, He would have made us solitary beings each on our own private island to have no interaction with anyone. but that is not how He made us. He made us to lie with people, and our survival depend on their survive.

Asking for help is one of the hardest thighs we have to do. Three simple words, "I" "Need" "Help". Why? Why are they so hard to say, when in reality none of them is longer than 4 letters strung together. Yet when we say those words "I need help", we feel weak. We are ashamed at needing someone else for help. We are ashamed and feel like a burden to others. But none of this is true. Needing help, especially needing help as I now do, is a very humbling experience. You are purring your care into the hands of someone else, giving them the control that you have into their hands. This is very difficult for us. For some reason, we are always trying to prove that we need no one and can do everything by ourselves.

I think back to when Mary Magdalene washed Jesus' feet. It has always been viewed as something Jesus did for her, as if she wasn't even close at being the same caliber of human. But now that I have become so dependent on the help others, I realize what a humbling experience it must have been for Jesus. He had to take his trust and put in Mary. He had to give up the instinct t just do it for her instead of letting her do it for him.

In some ways having someone care for me is similar. I have to trust in them. It is hard to give up that control. Some things are so ingrained within you that you don't even consider having someone else do it. I've pulling up my pants for 28 years, Similarly, I clear off the table without even thinking. It's not that I don't need the help, but things are just automatic. It is the reason I typed up the way I like things to be done. I must gave up control, be humbled, and let them do what they are meant to do. I must learn to say.. "I need help."

Wednesday, January 25, 2012

Rose Colored Glasses

You look at me through your rose colored glasses telling me the words you think I want to hear. You live your life in a fantasy where everything ends as happily ever after. You wave your magic wand as if to make it all go away. But I do not live in this world. My world is one of fear and sorrow. Happy endings rarely exist.

You hide behind you rose colored glasses to hide from reality. You may think these words or those that I want to hear, but rather they are the ones you want to say. You refuse reality. You say it is to help me, an act of selflessness. But no. You are the selfish one. These words are meant to make YOU fell better. I feel anger as you defy the truth. You belittle me by giving me your platitudes.

Take off those glasses. Be strong and accept reality, my reality. This is no fairy tale, but rather a world of stark truth. Yet though there is dark, there is light. Joy and pain. Fear and Hope. Take off your rose colored glasses, and you will live again.

Tuesday, January 10, 2012

Breathe Easy

I lay there as I look at you breathing. In. Out. In. Out. I see the muscles move as you fight for every breath. You are a fighter. A courageous warrior. You do not give up. You do not give in. You fight with every cell in your body. I see the hurt in your eyes. You are so utterly and completely tired. Yet you continue. In. Out. In. Out. You may not have leaped tall buildings. Or saved the world from impending doom. Yet, you are a hero. My hero. With every breath you take, a battle has been won. Others cannot possibly understand the fight you face every moment. They run. They play. Yet you cannot even remember what it was like to breathe easy. Did you ever breathe easy? Each breath for you is a championship won. I look at you with love and admiration. In one breath, you accomplish more than others can in a lifetime. I can only hope to be half as strong as you. In. Out. In. Out.

In honor of those who fight so valiantly against lung disease. They are true heroes.

Sacrifice

My heart breaks. I cry the tears of those that are lost - the warriors of this disease. They are children. Too young to be sacrificed. And sacrificed is what they are. It is not their time. They are but young innocent souls. They have yet to unfurl their beautiful butterfly wings and fly through the world. They haven't breathed the beautiful air or felt the sun on their face. They haven't yet felt the sand in between their toes, nor the wind in their hair. They are young, so full of life and opportunity. Yet all too soon they are taken from us. Why? Why I ask, as I shake my head in tears. I hold my heart in pieces, those that are no longer with us. I hold them as a piece of my heart that they have taken with them. The tears stream down my face as I cry out their name. Why? Why? Why did you take them? They are only a baby in this world. So much more to live. So much more to love. A world of experiences awaiting them. Yet, you took them. You ended their life before it was yet to begin. Why? Why? Why?

In memory of Cynthia Martinez, a beautiful and wonderful person, who touched the life of so many. A CF Warrior. May she breathe easy.

Also many others, whose life was cut too short by CF and other lung diseases. May you all breathe easy.